Exfoliative cheilitis and burning mouth syndrome: Epical fail in Swedish healthcare
HI!
So, after months of suffering from exfoliative cheilitis (chronic peeling and cracking of the lips) and burning mouth syndrome I finally decided to give the doctor a try again in August. This time I wanted to have a skin specialist. I had to wait all the way to last week, 7th of December, because they are so busy.
The skin specialist took a peek at my lips and shone a light inside my mouth, told me everything looked just fine, and that my problem is called exfoliative cheilitis (as if I did not know) and that they basically were "out-treated". They had made a culture of my tongue which showed nothing, tried with antibiotics and fungicide, and tested my blood for vitamin deficiency, all to no avail. I have also had spontaneous nose bleeds the last few weeks, to which she not reacted at all but just shrugged her shoulders, and a rash all over my face combined with keratinous scales on my skin similar to the lips. But since it was gone by the time I visited the doctor she only shrugged again when I told her, said that exf.ch. is extremely difficult to treat, and sent me out the door within 10 minutes total. I had to pay about $30 for that too. I just hate Swedish healthcare. Now, to be honest, I have had some good experiences too, but that is when you get to a specialist. Going to "vårdcentralen" is mostly a waste of time. They'll just tell you to come back in 4 months if you haven't died. The trick is in being persistent enough to let them remiss you to a specialist.
So now I basically wake up every day with hard lips which peel in the course of the day or sometimes not before evening, and if I don't mess with it, I don't get irritated skin around the mouth. I use Decubal salve for very dry lips a couple of times a day (I need to use a moisturizer, otherwise my lips crack and bleed) and the antibiotic and fungicide that I have left I use once a day. The problem is under control in the sense that no one sees it. Although I sometimes use foundation, I do not need it anymore to cover the red skin/keratinous scales, haven't had those in a while, and I think using make-up makes it worse when it does appear. The burning mouth syndrome is the same. Nothing helps. Currently I have a cold as well so a sore throat and runny nose added to the mess. ****!
Are you surprised that I have not exercised anything for two weeks? Feeling miserable and tired of it all.
Hope you are faring better.
So, after months of suffering from exfoliative cheilitis (chronic peeling and cracking of the lips) and burning mouth syndrome I finally decided to give the doctor a try again in August. This time I wanted to have a skin specialist. I had to wait all the way to last week, 7th of December, because they are so busy.
The skin specialist took a peek at my lips and shone a light inside my mouth, told me everything looked just fine, and that my problem is called exfoliative cheilitis (as if I did not know) and that they basically were "out-treated". They had made a culture of my tongue which showed nothing, tried with antibiotics and fungicide, and tested my blood for vitamin deficiency, all to no avail. I have also had spontaneous nose bleeds the last few weeks, to which she not reacted at all but just shrugged her shoulders, and a rash all over my face combined with keratinous scales on my skin similar to the lips. But since it was gone by the time I visited the doctor she only shrugged again when I told her, said that exf.ch. is extremely difficult to treat, and sent me out the door within 10 minutes total. I had to pay about $30 for that too. I just hate Swedish healthcare. Now, to be honest, I have had some good experiences too, but that is when you get to a specialist. Going to "vårdcentralen" is mostly a waste of time. They'll just tell you to come back in 4 months if you haven't died. The trick is in being persistent enough to let them remiss you to a specialist.
tripleclicks.comSo now I basically wake up every day with hard lips which peel in the course of the day or sometimes not before evening, and if I don't mess with it, I don't get irritated skin around the mouth. I use Decubal salve for very dry lips a couple of times a day (I need to use a moisturizer, otherwise my lips crack and bleed) and the antibiotic and fungicide that I have left I use once a day. The problem is under control in the sense that no one sees it. Although I sometimes use foundation, I do not need it anymore to cover the red skin/keratinous scales, haven't had those in a while, and I think using make-up makes it worse when it does appear. The burning mouth syndrome is the same. Nothing helps. Currently I have a cold as well so a sore throat and runny nose added to the mess. ****!
Hope you are faring better.
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